Paediatric Assessments Measuring Children’s and Adolescents’ Perceptions on their Activity Capacity, Performance, and/ or Participation. A Systematic Review

Abstract: Introduction: In previous years, Occupational Therapy relied on the parents and caregivers’ perspectives about their children’s activity capacity, performance, and participation. The shift to a more child and family-centred practice has led to the creation of a variety of self-reported assessments for children and adolescents. This study reviewed articles containing paediatric self-report assessments, available for use within the Occupational Therapy area, and critically appraised them. Method: A systematic review in seven databases with the use of 22 search terms was conducted. Inclusion criteria was articles containing paediatric and adolescent reported assessments available to Occupational Therapists, published up to 20 years old and written in the English language. Exclusion criteria included articles containing impairment-based measures and proxy reported measures. The initial literature search took place between March 1st, 2018 and April 30th, 2018. Eighty-two articles met criteria, and, from these articles, 21 assessments were found and appraised using the COSMIN checklist Results:. Twenty-one assessments were found to measure children’s and adolescents’ perceptions on their activity capacity, performance and/ or participation. All their characteristics and technical details are mentioned in depth in this research. When applicable, clinimetric properties were appraised and found quite a few with good or excellent reliability and validity. Few assessments had not any research regarding their clinimetric properties. Conclusion: Most found assessments measured activity capacity and performance. The need for more participation-based measures emerged. Few assessments showed good or excellent reliability and validity which need to be considered if used within clinical practice.